Many of you will recall that Todd & Sarah's youngest son has Hurler's Syndrome. Arriving in Portland by train from Seattle, I went to the children's hospital. Ethan was receiving an infusion, his 2nd that day.
Walking into a children's ward, memories flooding back to 33 years ago, I was struck with how upbeat people were. Ethan was busily playing while his dad dutifully rolled the IV pole after him.
We were there until 6:30 p.m. Todd has been there many more hours. Still he maintained a calm and attentive demeanor with his active almost 2 year old.
Coming from the U.K, where I witnessed so much difficulty for those seeking asylum, I was struck again by how easy most of us have it. A child about 8, head completely shaven, walked quietly with his mother. A teen rolling himself about in a wheelchair. There is so much suffering.
Around 6:30 Sarah arrived with Caleb, Ethan's older almost 6 brother. Full of energy and waiting to be held high, he greeted me.
We retired to the cafeteria. I was touched by how easily Ethan & Cal played. Children teach us how to live. It is a difficult and long road ahead of Ethan and his family. He is fortunate to have two loving parents. It is impressive to see Todd & Sarah together, clearly in love and managing a difficult & heartbreaking situation.
Please keep them in your prayers & good thoughts. The immediate question is will the transplant take sucessfully.
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REFLECTIONS & ARTICLES
Thoughts on the amazing people I get to meet.
Rich, my 19 year old friend, soon to be Franciscan and recent community member at Haley House in Boston. An article he wrote.
http://www.capuchinfranciscans.org/pdf/2008%2003%2011%20CVO%20Update%20A%20community%20of%20two%20tables.pdf
Rich, my 19 year old friend, soon to be Franciscan and recent community member at Haley House in Boston. An article he wrote.
http://www.capuchinfranciscans.org/pdf/2008%2003%2011%20CVO%20Update%20A%20community%20of%20two%20tables.pdf
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